Submit Your MG Patient Data to Help Researchers Find Better Treatments for Myasthenia Gravis
Once you have enrolled and filled out the survey, you can contribute your up to date health data twice a year.
If you are Already Enrolled in the MGFA Global MG Patient Registry
You have the option of entering your patient health data in the MG Registry survey using your computer or a mobile app.
Option 1 – Using a Computer
To use a computer to enter data in the MG Registry survey, click on the button below to log in. Once you log in with your username and password, scroll down to the teal square that says “Take the MG Registry Survey”. The box will be available for you to add your patient data to the MG Registry by taking the survey twice a year. If you forget your password, you can re-set it by clicking the “Forgot password?” link below the sign-in fields.
Option 2 – Using a Mobile App
To use a smartphone to enter data in the MG Registry, you will need to download the Health Storylines mobile app on your phone. If you already have the Health Storylines app, find, and tap on the app icon on your smartphone, then tap on the “Take the MG Registry Survey” button to contribute your data.
If you do not currently have the Health Storylines app on your phone, then tap on the button below. On your smartphone, after downloading the mobile app, create a profile and then tap on the “Take the MG Registry Survey” button to contribute your data.
If you Want to Enroll in the MGFA Global MG Patient Registry for the First Time
Option 1 – Using a Computer
To enroll in the MG Registry using a computer, click the button below to create your patient profile. Create an account by adding your username and password and then go to the teal square “Enroll in the MG Registry Survey” to add your health data to Part A and B for the first time. Once you fill out the survey for the first time, a follow-up survey will appear twice a year for you to contribute your updated health data.
Option 2 – Using a Mobile App
To use a Mobile App to enter data in the MG Registry, you will need the Health Storylines app. Tap on button below to enter data from anywhere using your phone. On your Smartphone, after downloading the mobile app and creating a profile, tap on the “Enroll in the MG Registry Survey” button to contribute your data to Part A and B. Once you fill out the survey for the first time, a follow-up survey will appear twice a year for you to contribute your updated health data.
Use the Health Storylines Mobile App to Track Health Information and Symptoms
The Health Storylines Mobile App offers MG patients the ability to track health and symptom information in addition to filling out the MG Registry Surveys. Explore the Health Tools available on the home screen of the app.
Learn more about the MGFA Global MG Patient Registry on the MGFA Website
Need More Information?
If have any questions about the MGFA Global MG Patient Registry, please email the MGFA team at the following email address: mgfa@myasthenia.org and a representative will get back to you promptly.
Developed by Alira Health in partnership with the
Myasthenia Gravis Foundation of America