Welcome to Myasthenia Gravis Patient Registry!
Thank you for your interest in participating in the MGFA Patient Registry. At this time, the Registry is closed to new enrollment as the site is under construction as we transition to a new platform and database. Please send your inquiries to the MGFA at the following email address: firstname.lastname@example.org and a representative will get back to you promptly. We hope you plan to contribute your patient data in the near future and we anticipate the Patient Registry being open for new enrollment by early June 2022.
The Registry is a confidential means for MG patients to provide information and real patient data that will be useful to medical/research communities in the assessment of disease course, use of various therapies, and estimation of disease costs. In addition, the registry data provides an opportunity for MG researchers to gauge the potential for trial recruitment and to communicate with patients directly about potential research investigations, while respecting their privacy. Please consider enrolling in the MGFA Registry in June.