Welcome to Myasthenia Gravis Patient Registry!
The Myasthenia Gravis Patient Registry is an active database of persons with Myasthenia Gravis (MG), developed for the purposes of research, treatment, and patient information. The MG Patient Registry is a confidential and patient-driven research project, funded by the Myasthenia Gravis Foundation of America (MGFA), managed by the MGFA and the Coordinating Center of the University of Alabama at Birmingham (UAB) with oversight by the MGFA Patient Registry Committee*.
TOGETHER WE ARE STRONGER – PLEASE JOIN US!
MG Patient Registry is:
- For Myasthenia Gravis Research
- Participant Driven
- Free to Enroll
- Open to Adults 18 and Older
- Open to Residents of the United States
The Registry will expand to other countries in the future. Please check back!!
Vision of the MG Patient Registry
The vision of the MG Patient Registry is to support the MGFA vision of “a world without MG”, while aiding in the improvement of care and quality of life for persons with myasthenia gravis and their families. The MG Patient Registry is designed to:
- Offer a confidential means for patients to provide information that will be useful to medical/research communities in assessment of disease course, use of various therapies, and estimation of disease costs.
- Provide a system for investigators to gauge the potential for trial recruitment and to communicate with patients directly about potential research investigations, while respecting their privacy.
- Educate patients, caregivers, non-expert health care providers, and funding entities about MG through the use of various media. For example, a newsletter with articles about research findings and other topics relevant to individuals with MG will be sent to participants annually.